Kualitas Hidup Anak Usia Sekolah Penyandang Thalasemia

Authors

  • Henny Suzana Mediani Keperawatan, Universitas Padjadjaran
  • Gusgus Ghraha Ramdhanie Keperawatan, Universitas Padjadjaran
  • Anjani Fikri Ciputra Hospital, Kabupaten Tangerang

DOI:

https://doi.org/10.31004/obsesi.v6i3.1933

Keywords:

anak usia sekolah, kualitas hidup, thalasemia

Abstract

Kualitas hidup anak thalasemia sangat dipengaruhi oleh fungsi fisik, fungsi psikologis/emosi, fungsi sosial dan fungsi sekolah. Penelitian ini dilakukan untuk mengetahui kulitas hidup anak usia sekolah penyandang thalasemia. Penelitian ini merupakan penelitian deskriptif kuantitatif dengan teknik pengambilan sampel purposive sampling. Sebanyak 70 orang tua dijadikan responden dalam penelitian. Instrumen yang digunakan adalah kPediatric Qualitity of Life Inventory (PedsQL). Anak usia sekolah penyandang thalasemia sebagian besar pada kategori rentan (64,3%). Kualitas hidup fungsi fisik mayoritas dalam kategori baik (68,6%), kualitas hidup fungsi psikologis/emosi dalam kategori baik (61,4%) dan kualitas hidup fungsi sosial dalam kategori baik (52,9%). Sementara kualitas hidup fungsi sekolah dalam keadaan rentan (74,39%). Hasil penelitian menunjukkan penyakit thalassemia merupakan penyakit kronik dengan kualitas hidup rentan sehingga diperlukan upaya untuk meningkatkan kualitas hidup anak terutama pada domain fungsi sekolah. Walaupun anak menjalani pengobatan secara rutin, pemenuhan kebutuhan belajar mereka tetap perlu dipertahankan.

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References

Alaleh, G., Ziba, F., Maryam, H., Fatemeh, S., Ali, M., Amin, M., James, W. V., Zahra, F., & Fariborz, Z. (2012). Validation of Persian Version of PedsQLTM 4.0TM Generic Core Scales in Toddlers and Children. Int J Prev Med. , 3(5), 341-350.

Ansari, Azarkeivan, Nojomi, & Hassanzadeh Rad. (2014). Quality of life in patients with thalassemia major. Iran J Ped Hematol Oncol, 4(2), 57-63.

Borhani, F. , N. M. K. , R. E. D. , & S. S. (2011). The effect of family-centered empowerment model on quality of life of school-aged children with thalassemia major. Iranian Journal of Nursing and Midwifery Research, 16(4), 292-300.

Cappellini, M. D. , C. A. , P. J. , T. A. , & V. v. (2014). Guidelines For The Management of Transfusion Dependent Thalassaemia (TDT) 3rd Edition. . Publishers Thalassaemia International Federation. .

Gheissari, A., Farajzadegan, Z., Heidary, M., Salehi, F., Masaeli, A., Mazrooei, A., Varni, J. W., Fallah, Z., & Zandieh, F. (2012). Validation of Persian Version of PedsQLTM 4.0 TM Generic Core Scales in Toddlers and Children. In International Journal of Preventive Medicine (Vol. 3, Issue 5). www.ijpm.ir

Hockenberry, M. J., & Wilson, D. (2009). Wong's essentials of pediatric nursing. Mosby.

Hoffbrand, A. V. , & M. P. A. H. (2016). Kapita Selekta Hematologi Edisi 6. EGC.

Jurnal Hasil Riset. (2020). Karakteristik Anak Usia Sekolah . Https://Www.e-Jurnal.Com/2014/01/Karakteristik-Anak-Usia-Sekolah.Html.

Kamil, J., Gunantara, T., & Suryani, Y. D. (2020). Analisis Faktor-Faktor yang Memengaruhi Kualitas Hidup Penderita Talasemia Anak di RSUD Al-Ihsan Kabupaten Bandung Tahun 2019. Jurnal Integrasi Kesehatan & Sains, 2(2). https://doi.org/10.29313/jiks.v2i2.5848

Mehran, K., Parham, M., Nooshin, T.-G., Bahareh, T.-F., Mahnaz, J., & Niloofar, G. (2021). Quality of Life and Related Paraclinical Factors in Iranian Patients with Transfusion-Dependent Thalassemia. Journal of Environmental and Public Health, 2021, 1-6. https://doi.org/10.1155/2021/2849163

Nikmah, M. (2018). Kualitas Hidup Penderita Talasemia berdasarkan Instrumen Pediatric Quality of Life Inventory 4.0 Generic Core Scales di Ruang Rawat Anak Rumah Sakit Umum Cut Meutia Aceh Utara. Sari Pediatri, 20(1), 11-16.
https://doi.org/10.14238/sp20.1.2018.11-6

Nonita, D., Jyoti, K., Damodar, B., & Deonath, M. (2016). Thalassemia Major: how do we improve quality of life? . Springerplus, 5(1), 1895. https://doi.org/10.1186/s40064-016-3568-4

Nurliana, O., & Apsari, C. (2016). Pendampingan Bagi Anak Penyandang Thalasemia Dan Keluarganya. Social Work Jurnal, 6(2), 154-272.
https://doi.org/10.24198/share.v6i2.13197

Rizqallah, A. A., Oqab, M. A., Mohammed, S. A., Mshari, S. A., Muath, K. A., Mashel, K. A., & Mazi, T. A. (2017). Quality of life in transfusion-dependent thalassemia patients . J Taibah Univ Med , 12(5), 465-470. eCollection 2017 Oct.
https://doi.org/10.1016/j.jtumed.2017.05.006

Sapna, S., Bageshree, S., Prashant, J., Madhavi, I., & Maninder, S. S. (2017). Quality of Life in Children with Thalassemia and their Caregivers in India . Indian J Pediatr , 188-194. https://doi.org/10.1007/s12098-016-2267-z

Yayasan Thalasemia Indonesia. (2015). Profile Thalasemia di Indonesia.

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Published

08-01-2022

How to Cite

Mediani, H. S., Ramdhanie, G. G., & Fikri, A. (2022). Kualitas Hidup Anak Usia Sekolah Penyandang Thalasemia. Jurnal Obsesi : Jurnal Pendidikan Anak Usia Dini, 6(3), 2243–2250. https://doi.org/10.31004/obsesi.v6i3.1933

Issue

Vol. 6 No. 3 (2022)

Section

Articles

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